19/05/2020
Hello my friends and well wishers in Nepal and outside. We have a sad news. Unfortunately my daughter has been diagnosed as a rare genetic disease called spinal muscular atrophy. There is no treatment here in nepal and the only hope for her survival is gene therapy drug called zolgensma available only in usa. Its a costly drug ammounting 2.1 million usd. I am running a gofund me campaign to collect funds for my daughter. I have been looking for every possible means for her. Please my elders, friends, colleagues, relatives, juniors and students , i request you all to share it and forward it to everyone you know. Kindly donate for her. She needs your support.
Please let me know if any suggestion or query.
https://www.gofundme.com/f/treatmentforsiyona?utm_source=customer&utm_medium=copy_link-tip&utm_campaign=p_cp+share-sheet
Together we can. Pray for siyona and keep sharing
This gofundme page is for Siyona-a sweet 8 months old baby girl.I have initiat… Anish K. Stha needs your support for Help Siyona fight Spinal muscular atrophy
