15/01/2020
Social Contract for Data
It is reasonable to think that people want to enjoy the best attainable standard of healthcare. They might also reasonably believe that achieving this depends on people like them sharing data for use in research.
And yet not everyone arrives at the conclusion that they themselves should share data. And thus the promise of improved, data-driven health care may be delayed, unevenly kept or unfulfilled.
So we ask: what are the obstacles that inhibit data-sharing and how can we move from this paradox. The moral conditions have to do with considerations of privacy and public interest. Many of the data we are talking about is personal.
https://www.weforum.org/agenda/2019/03/why-we-need-a-new-social-contract-for-data-in-healthcare/
The more people share their healthcare data, the better treatment will be. How can we make sure this happens fairly and ethically?