05/17/2026
Neurofibromatosis (NF) affects 1 in every 2,500 births, yet it’s often called “the most common disorder you’ve never heard of.” NF is a genetic condition that causes tumors to grow on nerves, often affecting the brain, spinal cord, and peripheral nerves. These tumors can impact movement, coordination, and communication.
Relay services can support people with NF who experience speech differences or hearing loss by making phone communication more accessible. If you or someone you know needs assistance learning how to use relay services, send us a DM! We are always available to help.
This World NF Awareness Day, join the campaign to help spread the word—because accessible communication helps people with NF stay connected, informed, and understood.
. Learn more about NF by visiting: https://www.nfnetwork.org/fundraising/nf-awareness-campaign/
ID: [1] “relaytexas.com. World Neurofibromatosis (NF) Awareness Day. Accessible communication helps people with NF stay connected, informed, and understood.” [2] Informational poster about NF1 Body from the Neurofibromatosis Network with a diagram of human body with the nerve network and different symptoms listed out with icons. “Neurofibromatosis Type 1 (NF1). Visual Impairment/Blindness. Optic Glioma. Lisch Nodules. Delayed Or Early Puberty. Speech Impairments. Scoliosis. Pseudoarthrosis. Bone Deformities. Short stature. Cafe-au-lait spots. Neurofibromas (tumors). Freckling in skin creases. Severe itching. Seizures. Headaches. Brain Tumors. Cognitive Differences. Brain Blood Vessel Defects. Macrocephaly (oversized head). Psychosocial burdens. High blood pressure. Digestive Issues. Chronic Constipation. Diarrhea or Vomiting. Cancer. Learn more by visiting nfnetwork.org. Note: It is critical that Neurofibromatosis be managed by an experienced NF Clinical team. Experienced NF practitioners can also partner with clinicians in the community with limited NF experience. see NF Clinical Care Options for more info.” [3] Informational poster about NF2-SWN Body from the Neurofibromatosis Network with a diagram of human body with the nerve network and different symptoms listed out with icons. “NF2 Related Schwannomatosis. (Formerly known as NF2). Blindness. Cataracts. Hearing loss and Deafness. Spinal Tumors. Meningioma and Balance problems. Bilateral Vestibular Schwannomas (Acoustic Neuromas). Schwannomas of the peripheral nerves and skin tumors. General muscle wasting can also be associated with NF2. Learn more by visiting nfnetwork.org. Note: It is critical that Neurofibromatosis be managed by an experienced NF Clinical team. Experienced NF practitioners can also partner with clinicians in the community with limited NF experience. see NF Clinical Care Options for more info.”
The Neurofibromatosis Network is the leading national organization advocating for federal funding for NF research and building and supporting NF communities.