08/06/2026
Update time: I have transferred to outpatient PT from in-home PT. So far so good. We are working on building endurance, balance, and strength. My incision is still healing but it is completely scabbed over so there is no drainage and it is finally headed is the right direction, PTL!
I thought I’d take a moment to try to describe what my feet and legs “feel” like. It’s not easy to put into words but I’ll do my best.
I have to look at my feet while walking in my walker to know where they are and that they are going in the right place to propel my body forward. If I don’t look at them, they could be above my head and I wouldn’t know it because I can’t feel them like normal so my brain doesn’t connect their location unless I can see them. As far as what I can feel, pins and needles all the time, worse when medications start to wear off, when I’ve been upright for too long, wearing socks and shoes, certain touch, etc. sometimes they suddenly feel like they are on fire in addition to the pins and needles. I have similar sensations in my finger tips, up the rest of my legs albeit in unpredictable locations that change frequently, and parts of my face. It’s not fun by any means. Every step I take requires mental effort to think about the muscles that need to work and it what order so a step can happen. It is physically and mentally exhausting. Sometimes, if I get up and go to the bathroom, refill my drink, and get some food, sit in my chair, and eat, I find myself nodding off because I’m so worn out. I also struggle with back pain as my insides continue to heal from so many surgeries and my back becomes accustomed to the hardware.
I love and am devoted to God who is bigger and greater than all of this. I believe He is working in my body to knit everything back together and rewire nerve pathways so my body can work together again.
I continue to learn new ways of making friendship bracelets and am working on some beading to keep my mind engaged, my fingers working, and feed my desire to create.